
This is very close to my heart and I would appreciate your help. It's free, won't even take a minute, and just takes the click of a button.
I (Jordan) have Ehlers-Danlos Syndrome. It is a rare, very painful, genectic, degenerative, connective tissue disorder. It causes me huge amounts of pain daily. I didn't know a name for my pain until March 27th, 2008. That day I was diagnosed with Ehlers-Danlos Syndrome. It took 17.5 years to diagnose me because it's so rare. Click "here" to read about it. Luckily, I don't have the fatal type of the disease. Mine is still dangerous and more manageable, but much more research is needed to find better treatments and maybe one day a cure. I was told to "just live with it" and called a hypochondriac for so long... no one deserves that. I don't want another sufferer to go through what I did especially without treatment. Your vote will help make this happen. Please help me and the other EDS sufferers by going to this address http://apps.facebook.com/chasecommunitygiving/charities/235097 (you must have a facebook account and become a fan of Chase Community Giving first) and voting for my charity Ehlers Danlos Syndrome Network Cares to win a million dollars. Please vote between January 15th and January 22nd. There are already semi finalists! WE NEED YOUR VOTE and appreciate it more than you know!!! If you have any questions, please don't hesitate to ask.P.S. - If you click here and click "attending" it will give you a little reminder under Events on your Facebook Home page!

1 comment:
Simply beautiful, Jordan. Can you post this on facebook?
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